Netherlands Cancer Registry (NCR)

This website contains the most important statistics on cancer in the Netherlands that are based on data  from the Netherlands Cancer Registry, which is managed by the Netherlands Comprehensive Cancer Organisation (IKNL). The recording of data in this database is performed by registration employees of IKNL. Data on incidence, prevalence, survival, mortality and risk are included in this website.

About the registration

Insight in the incidence and prevalence of cancer, which patients, which treatments and prognosis of cancer is important to improve care for cancer patients. The Netherlands Cancer Registry collects this data. The Netherlands Cancer Registry is the only oncological hospital registry in the Netherlands with data on all cancer patients. Data are available on national level from 1989 onwards. These data are reliable and objective.

Aim

IKNL aims to provide insight in the characteristics and magnitude of cancer in the Netherlands. Data from the Netherlands Cancer Registry are used for several purposes:

  • to support epidemiological studies
  • to support and evaluate clinical studies
  • to develop and evaluate guidelines
  • to evaluate screening programmes
  • for (inter)national comparisons of incidence and survival
  • to answer political questions and for the development of policy of institutes and government
  • for descriptive statistics in studies on clusters of cancer

What kind of data does the cancer registry provide? To answer the objectives as good as possible, several types of data are available. 

International

The Netherlands Cancer Registry is linked to the International Agency for Research on Cancer (IARC) and delivers anonymous data to the European database of the European Network of Cancer Registries (ENCR). Regions within the Netherlands with complete follow up (survival) participate in the EUROCARE study. In this study survival from several European countries is gathered and analysed.

NCR data & figures

With NCR data & figures you can make your own graphs and tables on cancer incidence according to localisation, region, sex and age. The data are available from 1989 to 2018 (preliminary data). You can compose graphs and tables yourself by selecting a cancer in the menu 'Cancer type'.

Publications

Data from the NCR currently are used in over 200 publications per year in peer reviewed medical journals and have a proven impact on cancer. For example, changes in the Dutch healthcare system, based on insights from the NCR, resulted in decreased postoperative hospital mortality rates, being most outspoken for patients with pancreatic cancer: from 24 to 4%. The NCR is also used as a primary source for evaluating effectiveness of treatment. Prediction models based on NCR data help individual patients and care professionals in shared decision making, e.g. when considering breast conserving surgery. IKNL participates and delivers facts and figures from the NCR for the public website kanker.nl that is consulted 80.000 times/month.